For the first time yesterday I walked outside the house without a cane! No I am not cured but something is happening I cannot deny! Because of the phenomenon of 'social media' a treatment that has it's roots 70 years ago is seeing the light of day.
I AM NOT SAYING EVERYBODY SHOULD DO THIS YET...... but it SHOULD BE OFFERED AS A CHOICE. Who knows.... when it is fully explored it may help with more than just ms.
Free will is all we want when choosing a procedure over a falsely advertised drug therapy. In 1986 I was offered methotrexate as a 'promising [but not quite promised] cure'. I watched my friends who did not have the pharmaceutical training and real life experience I had as to what these drugs actually do to your body, fall for the glimmer of hope as the anticancer drugs brought them to the brink of death and did needless untold damage to their bodies with NONE of the "dangled....implied.....reLIEf" from the suffering of ms.
I chose freedom and just said NO.
By the time they came on the market, the CRAB drugs were not indicated for ppms which is where I had progressed to. In other words we all understand I did not have any "remitting" that their drugs could vaguely take credit for.
I watched as some of my friends suffered through the treatments that seemed to me make them sicker.....with again implied relief that could easily be mistaken for a remitting phase....
They chose to exclude me, NO CHOICE on my part.
CCSVI came along, shunned by NM$$, given the cold shoulder by the Neurologist and were it not for a handful of dedicated "social activist" would have been swept under the rug and disposed of as an annoyance and inconvenience to those who would profit from our misery.
I was convinced that there may be something here so I volunteered for a study, had the test performed by vascular experts and when it was found that I had blockages in my jugular veins, underwent a medically necessary procedure to unblock them.
I almost did not have a choice, battling the greed, pride and stubbornness of the many, I chose to listen to the few and am now for the first time since 1986 walking without a cane all the time. I am in shock by the alertness, can feel the difference in blood flow in my neck and the straightness in my walking.
I do not claim 100% cure, it took 30 years to get my body in the current shape it is in and I will give it some time to recover.
ALL I AM SAYING IS GIVE ME A CHOICE AS TO WHERE THE RESEARCH MONEY GOES. WHERE WOULD WE BE IF THIS WAS PURSUED 70 YEARS AGO [go back and you will see where the original vascular studies had their roots.
We need to UNITE and demand free choice, it is our bodies going through this. WE WANT THE CHOICE!!!
Sincerely, Bill Sullivan
